RECOMMENDATIONS ON SOCIAL SUPPORT TO FAMILIES AFFECTED BY HIV/AIDS

Tetiana Liakh, Tetiana Spirina, Tetiana Alieksieienko

Abstract


The purpose of this article is to provide recommendations for social workers and social field practitioners of state and non-governmental organizations working with families affected by HIV/AIDS. The article identifies a series of crisis stages of families affected by HIV/AIDS. Families caring for HIV-positive children go through four crisis stages. The first stage comes after the report about an unconfirmed possibility that a child has HIV. The second stage is when the diagnosis confirms the child’s HIV positive status. The third stage coincides with the first signs of opportunistic infections in the child. The fourth stage is associated with the progression of the disease and the development of the fourth clinical stage of HIV infection. At each of these stages, families need medical, psychological, and social support. In line with professional support, an effective method of assistance and a way to overcome a crisis can be self-help groups, in which people learn to voice their difficulties and problems, seek support or provide it to other families.

Using the results of the study gained through focus groups with social work practitioners from various regions of Ukraine, the authors developed recommendations on supporting families affected by HIV/AIDS.

 


Keywords


HIV infection; HIV-positive status; children living with HIV; social services; social workers; families affected by HIV/AIDS

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References


Bachanas, P.J., Kullgren, K.A., Schwartz, K.S., McDaniel, J.S., Smith, J., & Nesheim, S. (2001). Psychological adjustment in caregivers of school-age children infected with HIV: Stress, coping, and family factors. Journal of Pediatric Psychology, 26(6), 331-342. DOI: https://doi.org/10.1093/jpepsy/26.6.331

Castro, R., Orozco, E., Aggleton, P., Eroza, E., & Hernandez, J. J. (1998, Nov). Family responses to HIV/AIDS in Mexico. Social Science & Medicine, 47(10), 1473-1484. DOI: https://doi.org/10.1016/s0277-9536(98)00193-2

Domlyn, A.M., Jiang, Y.P., Harrison, S., Qiao, S., & Li, X.M. (2019) Stigma and psychosocial wellbeing among children affected by parental HIV in China [Article; Early Access]. Aids Care-Psychological and Socio-Medical Aspects of AIDS/HIV, 8. DOI: https://doi.org/10.1080/09540121.2019.1687834

Glaser, B.G. & Strauss, A.L. (2012). The Discovery of Grounded Theory: Strategies for Qualitative Research. New Brunswick & London. Aldine Transaction.

Kupst, M., & Schulman, J. (1988). Long-term coping with pediatric leukemia: A six-year follow-up study. Journal of Pediatric Psychology, 13, 7-22.

Lachman, J.M., Cluver, L.D., Boyes, M.E., Kuo, C., & Casale, M. (2014). Positive parenting for positive parents: HIV/AIDS, poverty, caregiver depression, child behavior, and parenting in South Africa. Aids Care-Psychological and Socio-Medical Aspects of Aids/Hiv, 26(3), 304-313. DOI: https://doi.org/10.1080/09540121.2013.825368

Mellins, C.A., & Ehrhardt, A.A. (1994). Families affected by pediatric acquired immunodeficiency syndrome: sources of stress and coping. Journal of Developmental and Behavioral Pediatrics, S54 – S60. DOI: https://doi.org/10.1097/00004703-199406001-00010

Merton R.K., Kendall P.L. (1946). The Focused Interview. The American Journal of Sociology, 51, 6, 541-557.

Richter, L.M., Sherr, L., Adato, M., Belsey, M., Chandan, U., Desmond, C., … Wakhweya, A. (2009). Strengthening families to support children affected by HIV and AIDS. Aids Care-Psychological and Socio-Medical Aspects of AIDS/HIV, 21, 3-12. DOI: https://doi.org/10.1080/09540120902923121

Taneja, G., Dixit, S., Yesikar, V. & Sharma, S.S. (2013). A study to assess the needs of people living with HIV/AIDS reporting to an ART Center of Central India. Aids Care-Psychological and Socio-Medical Aspects of Aids/Hiv, 25(1), 66-70. DOI: https://doi.org/10.1080/09540121.2012.686595




DOI: https://doi.org/10.17770/sie2020vol4.4944

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